Ana had her 2-week visit with the new hematologist, and her platelets levels were the same as they were 2 weeks ago so that apparently finally “proves” that prednisone isn’t helping. Glad it took 5 months for that to be clear.
Anyway, she’s going to start the weaning process – dropping her dosage 10mg/week while continuing to get blood tests every week. The plan is to see if once she tapers down slowly her levels stay where they are – they are low (51k) but definitely manageable. If they don’t continue to drop, they’ll call it good enough and, I presume, just test her every now and again as well as us being on the lookout for the symptoms of the low platelets.
If on the other hand she does drop again after stopping the prednisone, it’ll be time to look at the spleen removal as the next phase.