We had the second meeting with Ana’s new hematologist today. Some good things and some less-desirable things came out of it.
- Liver and Spleen scan came back negative for any abnormailities
- 4 or 5 other tests came back negative
- Test for blood platelet antibodies came back positive
- This doctor knows that a 9:40am appointment means 9:40am, and not 11:40am.
He describe, as we’ve known, diagnosing ITP is done by ruling out other causes. Unlike the previous doctor, he is actually actively running tests and ruling things out. As expected, everything is ruling out ITP and getting her prepared for a potential treatment by the spleenectomy.
Not so good things:
- The prior hematologist has had Ana on a dosage of prednisone that doesn’t really follow the recommended treatment pat for ITP.
- She needs to be on a higher dosage and THAT will provide a baseline and determine the next actions. 4 Months of her previous prednisone usage gets tossed out essentially, as far as determining treatment path. That’s depressing.
So she’ll be on the full dosage of prednisone for two more weeks. If her levels go down, it’ll indicate that the steroids aren’t doing anything and she’ll be weaned off them and the next step will be the spleen removal. If after two weeks her counts are stable, they’ll ween her after 4 weeks and keep testing. If once she’s off, her counts drop, the spleen will be removed.